Persepsi Pasien dengan HIV/AIDS dan Keluarganya Tentang HIV/AIDS dan Stigma Masyarakat Terhadap Pasien HIV/AIDS

The purpose of this study was to identify the patient’s and relative’s perception on HIV/AIDS & stigma amongst the people. The design of this qualitative research is phenomenology approach. Thirteen informants (7 patients and 6 relatives of the patients) participated the study. The demographic profile of the informants were male and female with age from 18 years old to 40 years old for the patient and 45-55 for relatives. The findings identified some themes which are: (1) Lack of knowledge about HIV/AIDS on patient and relatives (2) The patients were not well informed on their condition (3) Misperception on HIV/AIDS and mode of spreading of HIV/AIDS (4) HIV/AIDS patients are responsibled and deserved for having infected HIV/ AIDS (5) The effort of the patient & their relatives to say nothing about their condition because they are afraid to be isolated from the community (6) The feeling of being isolated by the family member or a certain group of the people (7) Intimidation and physical Teror (8) The feeling of desperate and (9) Patient’s hopes. The result of these studies could be beneficial to minimize stigma by improving the knowledge of the people where it may optimize the early detection on the high risk people. It could also optimizes the treatment of ARV & the nursing care to the HIV/AIDS patient and their quality of life during AIDS stage.