HOW EPILEPSY KNOWLEDGE, PERCEPTION OF STIGMA, AND AGE OF PEOPLE WITH EPILEPSY (PWE) CONTRIBUTE TO SELF-DISCLOSURE OF THE DIAGNOSIS

Mustamira Sofa Salsabila, Rini Hildayani, Erniza Miranda Madjid

Research output: Chapter in Book/Report/Conference proceedingChapterpeer-review

Abstract

This study aims to determine how medical and social knowledge about epilepsy, the perception of epilepsy stigma, and the age of people with epilepsy (PWE) contribute to self-disclosure of the diagnosis of this disease. Eighty-seven PWE participated in this study, consisting of 42 adolescents (17–20 years old) and 45 young adults (25–30 years old). Knowledge of the medical and social aspects of epilepsy was measured using the Epilepsy Knowledge Profile-General. The perception of epilepsy stigma was measured using the Epilepsy Stigma Scale. Self-disclosure of the diagnosis of epilepsy was measured using the Disclosure Management Scale. Multiple regression analysis showed that the perception of epilepsy stigma and age significantly contributed to self-disclosure of the diagnosis of epilepsy, with the perception of epilepsy stigma having the largest contribution. No relation was observed between the knowledge of epilepsy and self-disclosure of the diagnosis of epilepsy.

Original languageEnglish
Title of host publicationPromoting Well-Being in a Multicultural Society
PublisherNova Science Publishers, Inc.
Pages327-345
Number of pages19
ISBN (Electronic)9781536174229
ISBN (Print)9781536168907
Publication statusPublished - 1 Jan 2020

Keywords

  • Diagnosis of epilepsy disclosure
  • Epilepsy
  • Knowledge of epilepsy
  • People with epilepsy
  • The perception of epilepsy stigma

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