Abstract
Purpose: The implementation of home-based palliative care has been recognized as a commendable care model. However, it is noteworthy that families residing in Indonesia exhibit a propensity to predominantly seek palliative care services within hospital environments for their family members afflicted with palliative cancer. Therefore, this research’s aims is to explore the family members' perceived in their decision-making process of caring for the patients at the home of palliative cancer patients.
Method: This study qualitative study used a descriptive phenomenological approach. Data were obtained through in-depth interviews with 10 Indonesian family members of the palliative cancer patients refusing the discharge and analyzed by using the Collaizi method. Furthermore, the Inclusion criteria were a dominant family who cares patient and lives with patient.
Results: Three themes emerged in this study; are (1) lack of support in the decision-making, (2) Families rely on hospitalsand (3) pain and chronic sorrow.
Conclusions: Nurses should engage in collaborative partnerships with healthcare providers to inform about patient condition and goal of care. Nurse also need to facilitate families' decision-making processes regarding home palliative care.
Implications for cancer survivors: The implications of this study align with the nursing profession's commitment to patient-centred care and the promotion of shared decision-making. By actively involving family members in the decision-making process and supporting their emotional well-being, nurses can contribute to enhancing the overall quality of care for palliative cancer patients in the home setting.
Method: This study qualitative study used a descriptive phenomenological approach. Data were obtained through in-depth interviews with 10 Indonesian family members of the palliative cancer patients refusing the discharge and analyzed by using the Collaizi method. Furthermore, the Inclusion criteria were a dominant family who cares patient and lives with patient.
Results: Three themes emerged in this study; are (1) lack of support in the decision-making, (2) Families rely on hospitalsand (3) pain and chronic sorrow.
Conclusions: Nurses should engage in collaborative partnerships with healthcare providers to inform about patient condition and goal of care. Nurse also need to facilitate families' decision-making processes regarding home palliative care.
Implications for cancer survivors: The implications of this study align with the nursing profession's commitment to patient-centred care and the promotion of shared decision-making. By actively involving family members in the decision-making process and supporting their emotional well-being, nurses can contribute to enhancing the overall quality of care for palliative cancer patients in the home setting.
| Original language | English |
|---|---|
| Pages (from-to) | 1-20 |
| Journal | Research Square |
| DOIs | |
| Publication status | Published - 1 Jan 2023 |
